Education and hospitalized children

A lot of children are hospitalized every day. The California HealthCare Foundation mentioned that the 5% of adults care for a child with a health condition or disability. In Europe, 114 pediatric hospitals and pediatric units care for them. Since May 1986, the European Charter on The Rights of the Hospitalized Child adopted by the European Parliament proclaims the right of sick children not to be discriminated and to keep playing and studying, taking into account all dimensions of health.

Integrated Hospital Care in Spain is seen as one of the rights that protect all children regardless of their health. According to the State Regulations, the Ley de Integración social de los minusválidos (LISMI, 1982) states in article 29: “Todos los hospitales, tanto infantiles como de rehabilitación, así como aquellos que tengan servicios pediátricos permanentes (…), así como de los hospitales privados que regularmente ocupen cuanto menos la mitad de sus camas con enfermos cuya estancia y atención sanitaria sean abonados a cargo de los recursos públicos, tendrán que contar con una sección pedagógica para prevenir y evitar la marginación del proceso educativo de los alumnos en edad escolar internados en ellas.” Law gives priority to educational work but also considers social and psychological development of the sick child.

The hospital classrooms are the areas designated in hospitals to meet their needs. The objectives of the hospital classrooms are to support the overall development of students, to avoid social and scholar exclusion, compensate for deficiencies resulting from the disease, reduce stress and facilitate school integration of children.

The implementation of these spaces is regulated by an agreement between the Consejerías de Salud y Educación, which allows their set up tending to the children educational needs and facilitating contact between the hospital teachers and the educational centers. In the hospital classrooms, teachers try to ensure the continuity of the teaching of children.

The hospital teachers boast a strong motivation; the in-patient environment is stressful and can be hazardous to professionals within it. They must adapt school curricula in most cases in an individualized way. For this reason, teachers must divide their time between different students, and the result is that every child receives at the most one hour of classes per day. Education must be ensured in hospitals, although they are children who decide how and when access to this right.

His performance on each subject or not depends on what children want to do and nurse’s suggests, taking into account that in some moments “that education in the hospital is inappropriate because hospitalized patients are too ill to learn or retain information or skills”.

It must be emphasized that care for sick children is pointed now to minimize the time children spend in the hospital, in an attempt to not separates the sick child to his usual environment and alleviates in this way the complications associated with treatment. Children are hospitalized at present only when unavoidable. If the child has to be assisted in his house, he will need a teacher to move to his home to continue as far as possible the school program. This teacher would work in collaboration with the hospital teacher and teacher from the reference school. It is also considering other issues relating to children’s right to health care, such as their need to play.

 

SocialGo! La hora de los emprendedores sociales

El jueves 23 de febrero presentamos a las 18:00h en el Centro Cultural Bancaja de la ciudad de Valencia nuestro proyecto Parsley Project. Lo hacemos junto a otros cinco emprendedores sociales de la mano de la incubadora de empresas SocialNest.

El proyecto parte como una iniciativa de voluntariado que hemos emprendido un grupo de especialistas en comunicación a través de las TIC: Ana Paredes, Annabel Rosell y yo misma, Carmen del Rincón. Nuestro objetivo es ayudar a los niños enfermos de larga duración a mejorar su comunicación con el exterior, rompiendo con el aislamiento y aburrimiento que padecen en ese momento de su vida tan delicado. A través de tecnología les conectamos con un rincón del mundo que crece sano gracias a sus cuidados: un huerto localizado en su colegio y donde puede interactuar con la ayuda de la tecnología, por ejemplo, activando el sistema de riego, o de sus amigos, quienes le pueden ayudar a plantar una nueva semilla. Se trata de que vivan con menos ansiedad su enfermedad y disfruten de su habitual círculo de amigos.

Estamos buscando financiación para el proyecto, que se encuentra en fase de prototipo, y que vamos a poner en marcha con la colaboración de varias escuelas en Cataluña y hospitales pediátricos.

Os esperamos  el jueves 23 de febrero a las 18.00h al Centro Cultural Bancaja de Valencia.

La entrada es libre. Y para mejorar también esta experiencia, tras el evento se servirá un vino de honor!!!!

Centro Cultural Bancaja: Plaza de Tetuán, 3, Valencia,

Otros proyectos TIC en aulas hospitalarias

Hay numerosos antecedentes de experiencias con TIC en los contextos hospitalarios, tanto en los ámbitos internacional como nacional. La mayoría de las actividades llevadas a cabo hasta el momento se centran en crear experiencias lúdicas que permitan evadirse a los niños y en potenciar la comunicación entre los niños de diferentes aulas.

Dentro de ámbito internacional destacan:
1.The Starbright Foundation, en Estados Unidos, dedicado a niños enfermos crónicos internados durante largas estancias en hospitales. Su objetivo es educar y entretener mediante mundos virtuales y ponerles en contacto entre sí.
2. Sterrekind, en Holanda (similar al anterior)
3. Proyecto Carolina y Christer, en Suecia. dedicado a ayudar a superar el cáncer a niños mediante la utilización de las TIC. Se les conecta con sus amigos de clase y se les permite moverse con libertad por entornos virtuales.

En el ámbito nacional se han realizado las siguientes experiencias:
1. Un mundo de estrellas. Basado en el Starbright F. project. Se puso en marcha en 1998 por el Servicio Andaluz de Salud en el Hospital Universitario Virgen del Rocío.
2. Acciones de formación y seguimiento de Educación Básica, Vigo Dixital
Plantean la creación de una plataforma “Aula Hospitalaria Digital” centrada en la continuidad de los procesos educativos de los alumnos hospitalizados. Introduce la pizarra digital en el aula hospitalaria.
3. Teleeducación en aulas hospitalarias. Desarrollado por el MEC (Ministerio de Educación) en 29 aulas hospitalarias del país. Contempla la creación de una red de apoyo que potencia la comunicación de los alumnos.
4. Educalia. Es un portal con recursos educativos promovido por la Fundació la Caixa y que se usó en aulas hospitalarias de Castilla la Mancha y Asturias. Las actividades se centraron en la creación de un espacio común de aprendizaje lúdico. Se llevaron también a cabo videoconferencias entre niños hospitalizados de distintas aulas.
5. Murcia Pequesalud. Portal de intranet con material eminentemente lúdico a la que se accede a través de ordenadores portátiles conectados mediante red inalámbrica.
6. Proyecto Alter. Han formulado un protocolo de Atención educativa en red para niños en situación de hospitalización intermitente o de larga duración. Son una serie de pasos que puede ayudar a atender las necesidades de los niños hospitalizados con las características citadas. Propone que el niño sea motivado con actividades en las que pueda desarrollar su potencial personal, en formatos atractivos y accesibles para él, como es el caso de las herramientas telemáticas presentes en la red, con ayuda de sus dos tutores, el del aula hospitalaria y el de su centro de referencia. Estas actividades deben mantener el contacto con sus amigos del colegio del que provienen, creando cierto sentido de pertenencia a su grupo de clase y de continuidad en su proceso educativo.
Aunque todavía no pueden presentar conclusiones, en Alter afirman que la experiencia está siendo muy interesante para todos los participantes: profesores del centro de procedencia, profesores de las aulas hospitalarias, alumnos hospitalizados, compañeros de clase de su centro de procedencia, familias, otros profesionales que atienden a los alumnos… Los maestros de aulas hospitalarias están comprobando la utilidad de las herramientas telemáticas para el trabajo diario, tanto por ayudarles en el diseño de las actividades por los alumnos como por el hecho de encontrar en las TIC herramientas útiles para la comunicación con centros y familias.

***Resumen a partir del texto Proyecto ALTER: Alternativas telemáticas en Aulas Hospitalarias, una experiencia educativa de Mª Paz Prendes Espinosa
Grupo de Investigación de Tecnología Educativa de la universidad de Murcia, 2011,

Parsley Project. Some inspiring ideas

We think that a good way to maintain the dignity of people confined to hospitals for a long time could be to make them experiment a piece of the real world. The idea to take care of a real garden thanks to the technology (sensors, processors and actuators and video-cameras that broadcast in real time what is happening in the garden) could be inspiring to them. It’s important to point out that the project is not based on the simulation but in the real process of making vegetables and plants to grow.

Moreover, if at the same time, we allow patients to smell, touch and have a direct control on the flowers and plants sited on the hospital, patients would obtain an embodied experience reach in stimulus.

All the ideas related to recovering the body are very important in the project. I have the idea that the inspiring bodily experiences are able to strengthen the soul of people and therefore, get them well and recover healthy. I would like this project could be implemented and motivates children to get better.

SOME IDEAS TO IMPROVE THE PROJECT

1. Distributed cognition

Penny, Simon: (talking about Hutchins) “He analyzed the group activity of navigation on a ships bridge as a case of distributed cognition, in which a group of people performing specific roles and communicating to each other in specific ways, using a highly developed set of tools perform computational tasks.” [1]

The concept of «distributed cognition» is a important concept in the Parsley Project. This distributed cognition is going to put in contact all the members of the community: gardeners, volunteers, children and all the people invited by them to collaborate to look after their plants. Children are going to control this group, having the total freedom and deciding who can take part. At the first time, we are going to give them the tools to communicate all the member of the community. From the moment we set up the experience on children would take the control and decide how they want to use the communication tools.

Maybe, children decide to talk about soccer with their friends from the school and forget to water the plants. I assume that children are going to adapt the technology in ways we couldn’t imagined before but I think that the process to understand them is going to be really exciting.

On the other hand, if illness has dramatically changed the child’s social life, we have to take care about his new socialization inside the hospital. One of the motivations that could make a patient to be interested in the Parsley Project is the possibility to interact with other children. Should be these children living also inside the hospital or could be better to interact with external and healthy children? I’m not sure but I like the idea of sharing an area of the garden with other people, and take important decisions in groups.

2. Ubiquitous, Calm technologies and Equilibrium

Penny, Simon: “This new cognitive science is immediately relevant to the still-vexed “human factors” aspect of ubiquitous computing, precisely because it addresses aspects of human experience pertinent to the development of richer and more subtle, if no calmer technologies of interaction.”[2]

Dreyfus, Hubert L.: “According to Merleau-Ponty, in everyday, absorbed, skillful coping, acting is experienced as a steady flow of skillful activity in response to one’s sense of situation.”[3]

I would like to find the way to integrate all the interfaces of the project in the children’s rooms, but at the same time I would like to do it in a transparent way, avoiding the children and the doctors’ perception that the technology is invading the children’s place. About this idea, it’s important to know which are the hospital restrictions based on medical reasons about the use of Wi-fi or another data transfer systems.

I could imagine a big screen trying to simulate a window to the garden (to their own allotment in the public garden), switching on automatically in the morning, at the time to wake up. But isn’t this idea nothing more that the construction of a world that it’s inaccessible for ill children?

Also against the extended idea of the intrusion of computation everywhere, children should be able to communicate with the «Parsley community» with a portable and easy interface on his mobile phone, that he can switch on and off when he wants.

I think that the tangibility of this application will depend on, as Penny wrote, “the understanding of being-in-the-world, or, rather of a performative doing-in-the-world”. Interface has to be like one candy that children want to eat, without questions about the quantity of sweets they eat during the day or its quality. We are going to get tangibility if we understand children genuine interest and we manage to give suitable answers to their needs.

This last concept is deeply related with the Dreyfus idea of equilibrium, as far as all the experience and the system has to be able to evolve in a continuum, always changing according to the children expectations and needs.

3. Sense experience as a vehicle of knowledge, beauty and even ethics

Marks, Laura U.: “Across the membrane between communicability and incommunicability, the proximal senses build an intensity that is not social but is the meaningful lining of experience.”[4]

It’s also essential to give to the experience design a unique aesthetic connotation. Technology has to be ubiquitous but also delightfully beautiful.

If vision and hearing “are strongly associated with abstraction and transcendence because of their ability to seem independent of the body” [4] the embodied nature of the close senses of touch, taste, and smell is more evident, and thus they ability to link us to the material world. While vision and hearing senses are a constant features in the project (they can always see and hear what is happening in the garden), another senses like touch, taste, and smell are not so obviously included. After the classes I’m going to reinforce their presence at the project.

On the one hand, since the first days of this project I’ve attached importance to the use of touching interfaces on it. Also, children have a direct and tactile experience with the plant of the hospital, that can touch and water.

On the other hand, the sense of taste also comes in when harvested products return to the hospital and children can eat them (of course, we are going to use a biological standards in the process to make them grow).

Lastly, the mot inspiring and emotional sense is preset at the flowers of the hospital garden that should counteract the typical smelt that hospital have.

4. Mindfulness

Niedderer, Kristina: “Mindfulness as a state of awareness or consciousness implies my presence to the moment, where I look at my experience, rather than though it (…) Another consideration is the awareness or attentiveness of something”.[5]

At this point of the process of re-thinking my project, promoting mindfulness among children arises as the most important challenge. How can I create mindful interaction in a virtual context? And how can I guarantee enduring mindfulness when the life of some of the participants could hang by a thread?

On the other hand, how can I get them be aware of the importance of the constant cares that plants need? And how to reach their attentiveness to all the plants growth process?

I think that approaching the consequences of their actions to them by the visualization in real time by videocameras could play an important role. I also think that the child has to be able to interact directly with the garden, ordering some actions as watering. In this way, he could be able to see how the watering system has been triggered. But, does is it possible to extend the range of action than could be triggered from the hospital? Or, in another words, could be possible to mechanize another functions? I don’t think so if we cannot make the experience much more expensive. Mindfulness but also economically approachable. After all, we are in Spain and the present situation is not buoyant!

REFERENCES

[1] [2] Penny, Simon. Trying to be calm: Ubiquity, Cognitivism and Embodiment

[3] Dreyfus, Hubert L. The Current Relevance of Merleau-Ponty’s Phenomenology of Embodiment

[4] Marks, Laura U. Thinking Multisensory Culture

[5] Niedderer, Kristina Designing Mindful Interaction: The Category of Performative Object